Big data research could improve medical outcomes and reduce the waste of resources.
If we want My Health Record data to be made available for medical research we need to make it opt in, not opt out. We'll have a smaller dataset, but at least it will be ethically defensible.
Federal Health Minister Greg Hunt has announced that the My Health Record system will be modified to allow the permanent deletion of records.
Permanently and completely deleting information from IT systems is complex. The government should consider pausing the roll-out of My Health Record for longer to properly address this issue.
There are measures teenagers can take to protect sensitive details in their My Health Record.
The My Health Record brings a unique set of confidentiality concerns for young people under 18. These need to be better addressed to ensure teens don't forego important health care.
Health information is an attractive target for offenders.
Concerns about the scheme have prompted some Australians – including Liberal MP Tim Wilson and former Queensland premier Campbell Newman – to opt out.
The opt-out period for My Health Record runs from July 16 until October 15.
Unless you take action to remove yourself before October 15, the federal government will make a digital copy of your medical record, store it centrally, and give numerous people access to it.
My Health Record is a step towards empowering patients with greater knowledge about their health – and could help save lives in emergencies.
The Conversation published a story earlier today that was incorrect. The story, titled “We have less than three months to opt out before the My Health Record system has our details, and no-one told us…
How did a journalist manage to buy their own Medicare details on the dark web?
AAP Image/Dave Hunt
The sheer number of fallible people and systems with access to Medicare numbers makes it difficult to keep this data secure.
My Health Records were a big government investment, but they’re just not being used.
Will the My Health Record help people with communication difficulties share their health information across health providers?
Health Minister Sussan Ley wants people to be able to access their medical data using an app.
Lukas Coch/AAP Image
Although there are significant challenges to making data within My Health Record useful in the management of a person’s health, the move to make it more open is positive.