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Articles on Biobanks

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Participants in biobank studies are often asked for broad consent to use their data. Science Photo Library - TEK IMAGE/Brand X Pictures via Getty Images

Researchers can learn a lot with your genetic information, even when you skip survey questions – yesterday’s mode of informed consent doesn’t quite fit today’s biobank studies

Biobanks collect and store large amounts of data that researchers use to conduct a wide range of studies. Making sure participants understand what they’re getting into can help build trust in science.
Empty sample tubes wait to be filled in a blood and urine sample freezer. South Africa has no legislation governing biobanks that deal with human biological material. Reuters/Phil Noble

How to make sure South Africa’s biobanks balance scientific progress with the law

South Africa has no legislation setting out the rules for biobanks and the guidelines that do exist are not clear or detailed. This leaves the door wide open for unethical practises.

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