A US judge has allowed police access to the major DNA database without users' consent (including Australian users). It's a timely reminder that we urgently need genetic privacy legislation.
When you share your genetic data – even with the NHS – you don't know where it will end up, or how it will be used.
Data and privacy issues are tangled up in the DNA reports consumers get from big genetic testing companies – and the third-party sites they turn to in order to glean more from their raw DNA.
Our ability to reconstruct physical features from DNA is advancing, but can we ensure the privacy of "anonymised" genetic data if we can predict the face of its owner?
Data ethics should pay much more attention to the social value of research
The rapid growth of genetic testing and data-gathering could revolutionize health and medicine if governments work to protect people against privacy and societal risks.