I am a researcher and campaigner. I was recently an invited speaker at the House of Commons, Science and Technology Select Commitee Inquiry on gene editing and genomics.
I am the director of EthicsandGenetics.org
I have published academic articles, book chapters, and other articles - here are some examples:
https://www.theguardian.com/science/political-science/2015/mar/10/privacy-and-the-100000-genome-project
https://www.theguardian.com/science/political-science/2016/mar/15/the-government-seem-more-interested-in
https://www.theguardian.com/science/political-science/2014/jan/31/why-we-should-opt-out-of-the-governments-new-patient-database
https://www.theguardian.com/science/2013/feb/17/gene-genetic-database-nhs-genewatch-our-genes-than-our-voices