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Articles on Health data

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Managing large datasets of sensitive health information requires accountability. (Shutterstock)

Health data collected during the coronavirus pandemic needs to be managed responsibly

Data trusts are a key part of a health data infrastructure that manages user and patient information in a responsible, transparent and accountable manner.
Health care workers use a nasal swab to test a person for COVID-19 in Pembroke Park, Florida. Joe Raedle/Getty Images News via Getty Images

Video: What the huge COVID-19 testing undercount in the US means

A recent report by the CDC estimated that the true number of COVID-19 cases in the US could be six to 24 times more than the number of confirmed cases. A public health scholar explains the implications.
Flowers sit on a bench in front of Orchard Villa care home in Pickering, Ont. on April 27, 2020. THE CANADIAN PRESS/Frank Gunn

How some OECD countries helped control COVID-19 in long-term care homes

People living in long-term care facilities have been disproportionately affected by COVID-19 in Canada. A new report analyzing long-term care around the world assesses Canada's pandemic performance.
As data breaches occur more frequently, could blockchain provide greater protection for our health data? (Shutterstock)

How blockchain could prevent future data breaches

Data breaches are on the rise, but blockchain can provide a secure way for consumers to manage their data and their privacy.
Despite massive investments, Canada’s health-care system has not reaped the benefits of digital technology like banking and retail sectors have. (Shutterstock)

Good governance is the missing prescription for better digital health care

The digitization of health care in Canada has been a bumpy ride — due to lack of focus on governance, and lack of emphasis on interoperability, transparency and accountability.
User agreements are often long, complex and inaccessible texts that don’t help users understand what exactly is being done with their information. Shutterstock

Plain language about health data is essential for transparency and trust

As more data are collected, it's important for the public to understand how their health information is being used. But user agreements are often complex, lengthy and written in inaccessible language.

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