Drug development takes a great deal of time, money and effort. While future profits play a big factor in which diseases gets prioritized, advocacy and research incentives can also tilt the scale.
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Articles on Orphan diseases
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Although there is no cure for this disorder, there are treatments that can help alleviate symptoms.
‘Orphan drugs’ with high price points are being tested as treatments for COVID-19. There’s a better way to spur low-cost innovation for new drugs.
Specialty prescription drugs are responsible for countless medical miracles, but their high price tag is the main reason health care costs are out of control.
The Orphan Drug Act was enacted 34 years ago to encourage the development of drugs for rare diseases. Drug companies were guaranteed seven years of exclusivity. Then the rush was on to run up prices.
Top contributors
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Distinguished Professor of Pharmacy Practice, University of Connecticut
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Dean of the Sol Price School of Public Policy; Distinguished Professor of Pharmacy, Public Policy, and Economics, University of Southern California
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Professor of Medicine, Stanford University
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Assistant Professor of Neurology, University of Florida
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Professor of Philosophy, Binghamton University, State University of New York
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Assistant Professor of Neurology, University of Florida
