Articles on informed consent

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Do you know how the data from your running app is being used? from www.shutterstock.com/Artfully Photographer

December 22, 2016

Downside of fitness trackers and health apps is loss of privacy

Victoria J Palmer, University of Melbourne

Apps and wearable devices promise greater participation and empowerment in health care. But what are we risking when we take part in this new era of participatory health?

Obama annually welcomed students to the White House with their Science Fair projects. AP Photo/Susan Walsh

December 19, 2016

Obama administration’s big science and tech innovation: Socially engaged policy

Shobita Parthasarathy, University of Michigan

The outgoing president leaves behind some solid accomplishments in the world of science, tech and medicine. But the biggest departure from his predecessors might have been in his approach.

Who’s in charge once your biological material is out of your body? igemhq

March 28, 2016

If we don’t own our genes, what protects study subjects in genetic research?

Leslie E. Wolf, Georgia State University; Erin Fuse Brown, Georgia State University, and Laura Beskow, Duke University

Next-generation genomic research depends on study participants sharing their biological materials with scientists. But concerns over how that information is protected may hold some people back.

March 23, 2016

Sex education is letting British teenagers down

Max Biddulph, University of Nottingham

It's old-fashioned, out of date and varies massively from school to school.

August 24, 2015

Informed consent for stem cell research: why it matters and what you should know

Leslie Jacqueline Greenberg, University of Cape Town

When it comes to stem cells, the ways that informed consent has been obtained in the past are not sufficient and improvements are needed.

Empty sample tubes wait to be filled in a blood and urine sample freezer. South Africa has no legislation governing biobanks that deal with human biological material. Reuters/Phil Noble

August 24, 2015

How to make sure South Africa’s biobanks balance scientific progress with the law

Ames Dhai, University of the Witwatersrand and Safia Mahomed, University of the Witwatersrand

South Africa has no legislation setting out the rules for biobanks and the guidelines that do exist are not clear or detailed. This leaves the door wide open for unethical practises.

Top contributors

Victoria J Palmer
Senior Research Fellow & Honorary Fellow (Applied Ethics) Melbourne Networked Society Institute, University of Melbourne
Shobita Parthasarathy
Associate Professor of Public Policy and Women's Studies, University of Michigan
Erin Fuse Brown
Assistant Professor of Law, Georgia State University
Safia Mahomed
PhD Candidate, Steve Biko Centre for Bioethics, Faculty of Health Sciences, University of the Witwatersrand
Ames Dhai
Director of the Steve Biko Centre for Bioethics and Adjunct Professor and Head of Department of Bioethics at the Faculty of Health Sciences, University of the Witwatersrand
Leslie Jacqueline Greenberg
Professor of Human Genetics: Stem Cell Researcher, University of Cape Town
Leslie E. Wolf
Professor of Law and Director, Center for Law Health and Society, College of Law, Georgia State University
Laura Beskow
Director of the Program for Empirical Bioethics, Associate Professor of Medicine, Duke University
Max Biddulph
Associate Professor, Faculty of Social Sciences, University of Nottingham