Ethics by their very nature are tricky – if the morally right thing to do was clear-cut, we wouldn’t need to have ethical deliberations. Perhaps one of the most enduring ethical dilemmas is around questions of how researchers work with teenagers and children. Working with them can raise complex issues of consent; failing to include them can compromise research and shut them out of the benefits that research brings.
Fine lines around consent
People tend to assume all research with young people under age 18 requires formal consent from the young person and her parents or guardians. But it’s not that clear cut. Is a young person aged 17 and ten months necessarily less mature and able to consent for herself than a young person aged 18 and one day? And is it always ethical to let parents or guardians have the final say about participation in research if their son or daughter wants to take part?
The key document on research ethics in Australia, the National Statement on Ethical Conduct in Research Involving Humans, has something to say about both these issues. It distinguishes between levels of maturity and vulnerability and says “it is not possible to attach fixed ages to each level”.
It also outlines specific situations where parental or guardian consent is not required for a young person under age 18 to take part in research: when research isn’t especially risky, for instance, and if it aims to benefit the kinds of young people that the participants represent, such as homeless young people.
Privacy and justice
For adult participants, the principle of respect includes respect for “the capacity of human beings to make their own decisions”. And professional ethics for youth work insist that “young people are competent in assessing and acting on their interests”.

The National Statement says young people should be asked whether they want to take part in research. It even recognises that sometimes it is wrong to give parents or guardians the final say on their child’s behalf.
Parents may coerce their son or daughter, or they may be estranged from them, or it may be against the best interest of the young person to ask her parents for consent. This is particularly a problem when the research is about something personal (such as sexuality or how you get on with your siblings).
According to the principle of justice, all people should have the opportunity to take part in research that affects them. But requiring parental consent arguably contradicts this principle. Take, for instance, research that takes part in unstructured settings, such as skate parks. Would it be fair (or ethical) to exclude young people who want to take part from research because it’s impractical for them to go home, get their parent to sign a consent form, and come back?
The author of a paper on the subject in a special issue of Youth Studies Australia, which looks at the complexities of youth research, suggests it would been better to allow parents to give verbal consent by phone.
Another ethical dilemma is raised by research using mobile phones. At first glance, using mobile phones for research involving young people makes sense because it’s a research method that suits that demographic. But this also raises ethical concerns around blurring the boundary between public and private information. Young people may use their mobile phones on public transport and at parties where others may overhear their conversations.
Research ethics guidelines such as the National Statement are not directly helpful to such dilemmas as they are unable to quickly respond to such technological changes. Although research involving young people poses ethical challenges, not involving them would be unethical (and produce inaccurate results). Young people have the right to contribute to research about their lives, especially when that research affects policy that impacts them.
So the question is not whether they should take part in research at all but how to facilitate this in respectful and beneficial ways. University ethics committees (and the National Statement that informs their work) are not perfect. But if used well, they can help researchers work with young people.
Lynne Newington
Lynne Newington is a Friend of The Conversation.
Researcher
I would have thought children and youth would be so caught up with school, study, examinations, sports co-curricular's and part time employment if applicabe, to be sidelined into issues of research.
Parents find it hard enough trying to deal with their see-saw hormones, pressure of peer groups and the dangers they can entail, et al.
Stefan Schutt
Researcher
Great article. In our projects (involving technology and young people with Asperger's Syndrome), we tie ourselves in knots at times trying to ensure that that young people and their families are active participants in, and co-creators of, what we do and simultaneously trying to figure out what constitutes meaningful research. This is where the technology itself offers some real possibilities, as well as some real issues (as outlined in the article).
Kitty Te Riele
CRN Principal Research Fellow at Victoria University
It would be great if you end up writing not only about the 'findings' of your research but also about these 'knots', and how technology helped (and hindered?) untangling these.
It is inevitable that all of us will come across tricky issues and grey areas in our research. We may as well learn from each other about how we deal with them, rather than trying to work it out on our own!
Stefan Schutt
logged in via Facebook
Exactly Kitty - those 'knots' are shaping up to be an integral part of our research, particularly the evolution of the methodology. For instance, what do you do when young people have a lot to say but don't like to talk about themselves? In our case, this can be to the extent that even parents don't know what is going on in their kids' interior worlds. And following on: how do you deploy technology in a way that doesn't compromise participants' sense of privacy and safety? (and that, in our case…
Read moreRobert Nelson
Associate Director Student Experience at Monash University
This is a sage and valuable contribution. We cannot go by the book, and even the Australian Code uses some wonderfully subjective language to acknowledge that ethics are inflected. It talkls of ‘respect for freedom of expression and inquiry’ () and to ‘respect the truth and the rights of those affected by their research’. It also exhorts us to ‘manage conflicts of interest so that ambition and personal advantage do not compromise ethical or scholarly considerations’ and promotes ‘ethical principles…
Read moreKitty Te Riele
CRN Principal Research Fellow at Victoria University
Thanks Robert! You are right, research ethics are particularly tricky in fields that are relatively new to academic research, such as the creative arts (especially art performance that involves audiences in some way, and then researches that) and journalism (where the code of conduct for journalists differs markedly from research ethics codes, for example in relation to participants withdrawing from the project at a later point).
As with youth research, these difficulties don't mean ethical principles are useless - they just push us to keep pondering. And the more we can make our deliberations public, the more we can support each other - and help to educate university ethics committees (and yes, I am a member of one of those!).
HelenBerents
logged in via Twitter
Great piece Kitty! And a debate that is worth having (and continuing to have!). My phd research is with conflict-affected young people (and I went to Colombia to do fieldwork), and there were definitely convoluted dances with the ethics committee (and then with the organisation I was working with) to adequately meet institutional guidelines and requirements as well as to meet my own standards and commitment to recognising young people's competencies to consent and discuss issues that affected them…
Read moreDebra Joan Smith
Account Executive
I think this should be a universally decided issue for one of the creepiest things I have learned about in the past few years is a pharmaceutical company's experiments on kids in Africa without any concent procedures at all for they realized that there were no laws in place to prohibit them. Common decency is apparently insufficient.
Thus, the solution i would advocate is- strictest confidentiality after a minor gives consent or a minor and hid/her parents or guidarians. Once the data is collected…
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