Biobanks collect and store large amounts of data that researchers use to conduct a wide range of studies. Making sure participants understand what they’re getting into can help build trust in science.
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Questions abound about whether the scientist who created the first gene edited human beings took shortcuts in the ethical oversight process. But pedantically focusing on protocol misses the point.
Next-generation genomic research depends on study participants sharing their biological materials with scientists. But concerns over how that information is protected may hold some people back.
Kontributor teratas
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Director of the Lincoln Center for Applied Ethics, Arizona State University
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Assistant Professor of Law, Georgia State University
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Professor of Law and Director, Center for Law Health and Society, College of Law, Georgia State University
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Director of the Program for Empirical Bioethics, Associate Professor of Medicine, Duke University
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Associate Professor of Life Sciences, Arizona State University
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Assistant Professor of Sociology and Data Science, Purdue University
