Sufferers collected evidence of their persistent symptoms, and advocated for themselves and for further research. Even the term ‘long COVID’ stems from this activism.
A passionate crusader for the rights of women and children, Catherine Hay Thomson went undercover to investigate their treatment in public institutions and testified before a Royal Commission.
A new study reveals how many patient groups lobby for new drugs to be funded by public plans in Canada – all while receiving funding from the companies manufacturing the drugs in question.
SHARP Professor, Vitalities Lab, Centre for Social Research in Health and Social Policy Centre, and the ARC Centre of Excellence for Automated Decision-Making and Society, UNSW Sydney