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Senior Lecturer, School of Education and Communities, University of East London

After graduating from Warwick and Nottingham Universities, Janet taught in mainstream schools for 11 years before completing a post-graduate diploma in Specific Learning Difficulties (dyslexia) and working as a Special Needs and Specialist Dyslexia teacher. In 2001 Janet co-founded the national charity Action Duchenne in order to support medical research into treatments for the genetic muscle wasting impairment Duchenne Muscular Dystrophy (DMD).

From 2008 - 2011 she managed the Lottery funded 'Include Duchenne' project where she worked with over 60 children with DMD, their families and schools across the UK to improve literacy skills and which won the 2011 National Lottery Award for Education. From 2011 - 2016 she co-managed the Transition to Adulthood project 'Takin' Charge' which worked with 80 young people with DMD aged 14 - 19 years and their families. In 2017 Janet edited ' A Guide to Duchenne Muscular Dystrophy for Teachers and Parents' published by Jessica Kingsley publishers, with contributions from world leading specialists in DMD.

She has published research into the impact of the current Special Educational Needs Reforms (2014) on children with life-limiting impairments, their families and schools and has travelled to Denmark to interview adults with DMD about their lives and future plans. Janet is currently exploring the impact of Covid 19 on children with life-limiting impairments and their families, as well as working on a project with Girls with ADHD. Janet is a member of her local SEND Crisis group, a parent governor at a local comprehensive in East London, and a member of the Parent Advisory Board for the charity Duchenne UK.

Experience

  • 2014–present
    Senior Lecturer, University of East London
  • 2008–2016
    Project Manager, Action Duchenne

Education

  • 2013 
    Swansea University , PhD
  • 2005 
    Hornsby International Institute for Dyslexia, Diploma in Specific Learning Difficulties
  • 2002 
    Cardiff University, MA in Creative Writing and Teaching
  • 1994 
    Nottingham University , Postgraduate Certificate in Education
  • 1990 
    Warwick University , Renaissance and Modern History

Publications

  • 2020
    Troubling norms? Adults and teenagers with a life-limiting impairment in Denmark and England talk about their lives, support and future plans. , European Journal of Special Education
  • 2019
    Aspiration, austerity and ableism: to what extent are the 2014 SEND reforms supporting young people with a life‐limiting impairment and their families to get the lives they want?., British Journal of Special Education
  • 2017
    Taking charge and letting go: exploring the ways a Transition to Adulthood project for teenagers with Duchenne muscular dystrophy has supported parents to prepare for the future, British Journal of Special Education
  • 2017
    A Guide to Duchenne Muscular Dystrophy: Information and Advice for Teachers and Parents Jessica Kingsley publishers, Jessica Kingsley pubs
  • 2014
    Improving the reading skills of young people with Duchenne muscular dystrophy in preparation for adulthood. , British Journal of Special Education

Grants and Contracts

  • 2003
    Include Duchenne Learning and Behaviour in DMD
    Role:
    Manager
    Funding Source:
    Big Lottery