Next-generation genomic research depends on study participants sharing their biological materials with scientists. But concerns over how that information is protected may hold some people back.
It's old-fashioned, out of date and varies massively from school to school.
When it comes to stem cells, the ways that informed consent has been obtained in the past are not sufficient and improvements are needed.
South Africa has no legislation setting out the rules for biobanks and the guidelines that do exist are not clear or detailed. This leaves the door wide open for unethical practises.