Aaron Schokman

Aaron Schokman is a lived experience researcher who has recently submitted his PhD thesis at The University of Sydney. Aaron was diagnosed with narcolepsy, a rare and debilitating sleep disorder in his late teens that sparked his interest in research. These include patient-physician collaboration, how we measure treatment success and looking at ways to improve end-user participation (e.g persons living with a condition, family/carers) in health policy development. His current research triangulates the experiences of families, carers, physicians, and those living with narcolepsy to identify what is and isn’t working when living and managing narcolepsy in Australia.