People living with endometriosis wait an average of 7.5 years for a diagnosis. Social science researchers are working to identify ways to help reduce this timeline.
Some women with endometriosis are in so much pain, they’re giving up work. Others are struggling at work or uni. Here’s how we support women with this debilitating disease.
Many women are told not to complain about pain.
goffkein.pro/ Shutterstock
Our research revealed around 40% of women with endometriosis have neuropathic pain – a type of pain that doesn’t respond to traditional pain treatments.
Endometriosis can be an extremely painful condition.
Jelena Stanojkovic/ Shutterstock
There’s currently no cure for the condition, which millions of women suffer with worldwide.
Endometriosis awareness has skyrocketed over the last decade thanks to social media use, and this brings both new resources and challenges for those living with the disease.
(Shutterstock)
Histories of mistreatment and misdiagnosis of endometriosis has led people dealing with the disease to turn to the internet for information and community.
Women wait an average of eight years for diagnosis.
Cadmium_Red/ Shutterstock
A nationwide online survey collected information from 4,202 teenagers and young women in Australia, about how their periods affected their education – either at school, university or VET.
Endometriosis affects 10% of women, but many live with painful symptoms of the condition for years without a diagnosis. A lack of non-invasive screening tools and normalisation of period pain both play a role in this.
Endometriosis is a chronic condition that causes pain, infertility and gastrointestinal symptoms.
Joshua Resnick/Shutterstock
For some women with endometriosis, surgery and medication just aren’t cutting it to alleviate their pain and other symptoms. One in ten turn to cannabis.
It can be difficult to get pain from endometriosis under control.
Shutterstock
Women with endometriosis pay an average of $1,200 in out-of-pocket health costs a year. When you add lost wages and productivity, the costs add up to $30,000 per sufferer every year.
In women with endometriosis, tissue similar to the lining of the uterus is found outside the uterus, causing pain and infertility.
Nikodash/Shutterstock
Hannah Brown, South Australian Health & Medical Research Institute and Louise Hull, University of Adelaide
If you’re one of the one in six Australian couples experiencing infertility, you’ve probably thought about IVF. Here’s a step by step breakdown of how it all works.
It’s hard to know how many women are affected by adenomyosis.
Leon Biss/Unsplash
Professor of Women’s Health Research, Department of Obstetrics and Gynaecology, & Director of Research, Royal Women's Hospital, The University of Melbourne
Gynaecology Unit Head the Royal Women’s Hospital and Clinical Associate Professor in the Department of Obstetrics and Gynaecology, The University of Melbourne